Transplant Support and Information
In addition to the resources listed below, most transplant centers provide educational materials and sponsor support group meetings for their transplant patients.
Check with your transplant coordinator for more information.
- CenterSpan
- Internet site with transplant information, resources, and the Transplant News Network.
- Organ Transplant Association
- Website, e-newsletter, chat groups, news, information & support for transplant recipients, candidates, friends and family.
- Transplant Buddies
- Patients and families sharing feelings and thoughts about the transplant process.
- Organ Transplant Web Ring
- A chain of web sites and homepages devoted to transplants & organ donation.
- Transplant Recipients International Organization (TRIO)
- 1000 16th Street NW, Suite 602
- Washington, DC 20036-5705
- Toll Free: 1-800-TRIO-386
- Phone: (202) 293-0980
- Fax: (202) 293-0973
- Not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. College scholarships for transplant recipients.
- Transplant Video Journal
- Voicemail: (973) 316-8800
- Fax: (973) 316-2626
- Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
- Free quarterly video journal examines transplantation issues and current events. Sponsored by Novartis Pharmaceuticals. Leave a voice mail message or fax your name and address to be added to the mailing list.
- TransWeb
- Nonprofit educational website about transplantation and organ donation. Searchable database of local support groups and meetings.
- TRNSPLNT E-mail List
- Newsgroup: Transplant Newsgroup
- An E-mail discussion list for organ transplant recipients and anyone else interested in the issues, experiences, and realities of living with an organ transplant. It also serves as an open forum for discussing, and learning about, current issues effecting the practice of transplantation and organ donation. TRNSPLNT is mirrored (copied) to a USENET newsgroup, bit.listserv.transplant.
- TRNSPLNT FAQ
- "Frequently Asked Questions" and answers from bit.listserv.transplant (see above).
- United Network for Organ Sharing (UNOS)
- 1100 Boulders Parkway, Suite 500
- P.O. Box 13770
- Richmond, VA 23225
- Toll Free: 1-888-TXINFO-1
- Nonprofit organization responsible for administering the national organ allocation system. Exhaustive transplant center and waiting list statistics available on the UNOS website. "Transplant Living" section of the website offers extensive information and resources for transplant patients.
Books, Magazines, Newsletters:
- Solstice Newsletter
- Chronimed Pharmacy
- 10900 Red Circle Drive.
- Minnetonka, MN 55343
- Toll Free: 1-800-444-5951 x3736
- Email: This email address is being protected from spambots. You need JavaScript enabled to view it. (to request a newsletter)
- Chronimed provides express delivery of medications to patients' homes, work, hospital or physician's clinics. Publishers of Solstice, a newsletter for transplant patients.
- Dorien's New Liver
- On-line picture book written for children who need a liver transplant by a teen transplant recipient. Follow the liver transplant links to find the book.
- LifeTimes Magazine
- Stadtlanders Pharmacy
- 600 Penn Center Boulevard
- Pittsburgh, PA 15235-5810
- Toll Free: 1-800-238-7828
- Fax: (412) 824-1419
- Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
- Stadtlanders Pharmacy delivers medications via express delivery service, to home, work or vacation destination. Publishers of LifeTimes, a transplant patient magazine.
- Lizzy Gets a New Liver
- Children's book about liver transplantation. Also available through Amazon.com.
