Organizations

  The Cholestatic Liver Disease Consortium (CLiC) is a collaborative team of doctors, nurses, research coordinators, and patient support organizations throughout the US and UK, working together to improve the lives of children and families dealing with rare Cholestatic Liver Diseases. The goal of the CLiC team is to investigate five genetic causes of intrahepatic cholestasis and to train the next generation of clinical researchers

The Biliary Atresia Research Consortium (BARC) is a group of doctors, nurses, research coordinators and medical facilities in the U.S. working together to study infants with cholestasis (blockage of bile flow from the liver). Poor bile flow and buildup of substances in the liver can cause serious illness and lead to liver injury.

Liver disease in newborns is rare. In addition, there are not enough babies with cholestasis seen each year at a single pediatric liver center to adequately study the disease. Therefore the National Institutes of Health (NIH) is funding a network of ten pediatric liver centers across the United States to study causes and improve the diagnosis and treatment of infants and children with cholestatic liver disease.

Infants and children with cholestatic liver disease who receive their medical care at one of the participating BARC centers may be eligible to enroll in studies conducted by the BARC.

Individuals

Laurie and Joey Johansen, In Honor of their daughter, Ashley.

Joe and Peggy McDonald, In Honor of their daughter, Fiona.

Mariana Loboguerrero